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ORIGINAL RESEARCH ARTICLE
Study on the relationship between feelings of psychological control, sense of benefit, and burden on caregivers for children with congenital skeletal malformations
Xian Liu1 ,
Huijing Wu1*
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1
Department of Medical, Shanghai General Hospital, Shanghai Jiaotong University School of Medicine, Shanghai,
China
Submitted: 7 April 2023 | Accepted: 7 July 2023 | Published: 8 August 2023
© 2023 by the Author(s). This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution 4.0 International License ( https://creativecommons.org/licenses/by/4.0/ )
Abstract
Negative life events can lead to positive psychological changes despite the adverse effects. This study aims to investigate positive psychology in caregivers of children with congenital bone deformities. The research analyzes caregivers’ burden, psychological control, and benefit. The results showed: The average burden on caregivers for children with congenital skeletal malformations was 36.46 (mild-to-moderate), the individual burden score was around 21.13, and the responsibility burden score was around 8.55. The burden of care was negatively associated with the sense of benefit, suggesting that higher levels of psychological control were associated with lower caregiver burden. The sense of benefit partially mediated between psychological control and the caregiver burden.
Keywords
Care burden
Sense of psychological control
Sense of benefit
Congenital bone deformity
Funding
None.
Conflict of interest
There are no conflicts of interest in this study.
References
- Taylor SE, 1983, Adjustment to threatening events: A theory of cognitive adaptation. Am Psychol, 38: 1161–1173. https://doi.org/10.1037/0003-066x.38.11.1161
- Pascoe L, Edvardsson D, 2013, Benefit finding in cancer: A review of influencing factors and health outcomes. Eur J Oncol Nurs, 17: 760–766. https://doi.org/10.1016/j.ejon.2013.03.005
- Simin J, Xiuhong L, 2007, Application of the source theory of psychological control in basketball. Jr Sports Train, 5: 46–46.
- Chengxia W, 2017, Effect of Psychological Control Sources on the PTG of Parents of Special Children: The Mediating Effect of Social Support. China: Shaanxi Normal University.
- Lum HD, Lo D, Hooker S, Bekelman DB, 2014, Caregiving in heart failure: Relationship quality is associated with caregiver benefit finding and caregiver burden. Heart Lung, 43: 306–310. https://doi.org/10.1016/j.hrtlng.2014.05.002
- Canto A, 2018, Clinical application of benefit-finding for dementia caregivers. Am J Geriatr Psychiatry, 26: 1280. https://doi.org/10.1016/j.jagp.2018.09.011
- Beibei L, Wei W, Yu Z, et al., 2016, Research status of cancer caregiver intervention based on stress and coping theory. J Pract Med, 32: 1356–1358. (in Chinese)
- Reitais, 2015, Research on the Relationship Between Paternalistic Leadership, Psychological Control Sources, Positive Stress and Job Performance. China: Harbin Normal University.
- Fife BL, Huster GA, Cornetta KG, et al., 2000, Longitudinal study of adaptation to the stress of bone marrow transplantation. J Clin Oncol, 18: 1539–1549. https://doi.org/10.1200/jco.2000.18.7.1539
- Yanqin J, 2012, Study on Primary Caregiver Burden and Influencing Factors in Children with Cerebral Palsy. China: Nanchang University.
- Guihua H, Hong R, Zhiying Y, 2015, A qualitative study of direct caregiver care feelings in children with malignant bone tumors. PLA Nurs J, 32: 20–23.
- Pollock EA, Litzelman K, Wisk LE, et al., 2013, Correlates of physiological and psychological stress among parents of childhood cancer and brain tumor survivors. Acad Pediatr, 13: 105–112. https://doi.org/10.1016/j.acap.2012.11.005
- Jing B, Lanfeng Z, Earnestly Z, et al., 2019, Analysis of family caregivers of cancer patients based on stress coping theory. Nurs J, 34: 2203–2207.
- Shapiro, DH, 1994, Manual for the Shapiro Control Inventory. Cupertino: Behaviordata, p181–192.
- Zarit SH, Orr NK, Zarit JM, 1985, The Hidden Victims of Alzheimer’s Disease: Families Understress. New York: University Press, p115–121.
- Lie W, Xiaoshi Y, Zhe H, et al., 2006, Application and evaluation of the Chinese version of the caregiver burden scale. Public Health China, 22: 970–972.
- Shunzhen X, editor, 2008, Clinical Scientific Research Design. Beijing: Peking University Medical Press, p151.
- Zhonglin W, Lui C, Jietai H, et al., 2004, Intermediate effect testing procedure and its application. J Psychol, 36: 614–620.
- Cao CP, 2019, Study on the Current Status of Primary Caregivers’ care Burden and its Influencing Factors in Children with Congenital Hand and Foot Malformations. China: Shandong University.
- Miaolan G, Guozhen G, Jinlan G, et al., 2017, Study on parental care burden and its influencing factors in children with asthma. J Nurs Train, 32: 6.
- Zengjie Y, Dongmei L, Muzi L, 2016, Status of parental care burden and positive coping style of children with tumors and their relevance. Mod Clin Care, 15: 18–22.
- Zhen L, 2015, Study on Family Caregiver Burden and Influencing Factors in Children with Cancer. China: Jilin University.
- Tingting Z, Dongling L, Jing Z, et al., 2019, Progress in the source-related measurement tools of psychological control. Gen Pract China, 22: 2476–2481.
- Linyan X, 2016, Research on parental disease benefits and influencing factors in children with cancer. China: Jilin University.
- Shixiang L, Hongmei W, Yongyan Q, et al., 2013, Study on the influencing factors of primary caregivers of hemodialysis patients. J Nurs Manag, 2013: 3.
- Xie X, 2020, Benefit Finding, Symptom Burden and Quality of Life in Lung Cancer Patients. China: Zhengzhou University.
- Mei YX, 2018, Research on the Conceptual Framework of Stroke Caregivers and Its Assessment Tool. China: Zhengzhou University.
- Yishuang S, Qian L, Yishuang S, et al., 2016, Pathway analysis of the factors influencing the care burden of family caregivers in patients with COPD. Chin Mod Nurs J, 22: 176–180.
- Folkman L, 1985, Stress, appraisal, and coping. Behav Res Ther, 23: 714–715.
- Ruting W, 2020, Study on major caregivers’ benefits and influencing factors in patients with ischemic stroke. Huzhou Normal University.
- Ruting W, Yaping Z, Xiaoying L, et al., 2019, Progress in caregiver benefit findings and influencing factors. Gen Pract Care, 17: 4536–4539.
- Antoni MH, Lechner S, Diaz A, et al., 2009, Cognitive behavioral stress management effects on psychosocial and physiological adaptation in women undergoing treatment for breast cancer. Brain Behav Immun, 23: 580–591. https://doi.org/10.1016/j.bbi.2008.09.005
- Chandwani KD, Thornton B, Perkins GH, et al., 2009, Yoga improves quality of life and benefit finding in women undergoing radiotherapy for breast cancer. J Soc Integr Oncol, 8: 43–55.
- Stafford L, Foley E, Judd F, et al., 2013, Mindfulness-based cognitive group therapy for women with breast and gynecologic cancer: A pilot study to determine effectiveness and feasibility. Support Care Cancer, 21: 3009–3019. https://doi.org/10.1007/s00520-013-1880-x
- Guoqiu Z, Shulin C, Yiqiang W, 2007, Exploring the relationship between the sense of psychological control and mental health. Chin J Prev Med, 4: 472–474.
- Xiaomei H, 2021, Impact of family empowerment intervention on caregivers’ self-efficacy, coping style and psychological status in children with enterostomy. Chin J Health Psychol, 29: 5.
- Wenjuan T, Qunfeng L, Wenqian Q, et al., 2019, Motivational interviewing in caregivers of children with enterostomy. Chin J Nurs, 54: 896-901.
- Andi L, Min N, Lili H, et al., 2015, The effect of enabling health education on anxiety, depression and self-efficacy among caregivers of leukemia patients. Mod Clin Care, 9: 6.
- Chamberlain P, Patterson GR, 1995, Discipline and child compliance in parenting. In: Bornstn MH. Handbook of Parenting. United States: Lawrence Erlbaum Associates, Inc., p205–225.